Ups and downs and satisfying times...

Hello Dear Community

I hope you are having/or had a beautiful Wed.

Today was Photophresis and boy did it wipe me out this time. Yesterday I felt energized afterwards. I even took a yoga class in the early evening.

But today I came home and took a 3 hour nap and still am trying to "wake" up.

It feels like my lungs are improving in very subtle ways still but man oh man I am sooo tired most of the time, especially after 3 or 4 PM. This is so frustrating for me. I know it is my body working so hard and some of the meds I’m on, it feels like nearly a year ago after the transplant.

I have been doing my best to take yoga but still haven’t fully committed to walking around the block everyday, which I need to incorporate into my routine. I have started to paint and that felt good. Well I painted one day. Maybe I’ll walk and paint tomorrow.

The yoga feels good and has given me an opportunity to be with my breath just as it is, it is very limited at times and I find myself in resting poses often. But other times I can move with grace and I feel the strength in my muscles starting to come back. That feels fantastic.

This is a far cry from the full vibrant breaths I had when I was teaching. But it is teaching me to be joyful with where I am and what I have in this moment.

It’s a gift that I can get myself to class and move and breath and experience yoga.
I learned a lot from my yoga teacher last night; she spoke a lot about finding satisfaction in the moment with what we have. And that if we cant do that we will always be chasing that "Thing". So this is what I am trying to work with.

I want to honor my frustrations and release them but at the same time I want to be satisfied with this moment and what it is giving me.

The good news is we went down on my Prednisone dosage, so I went from 20mg to 15mg. I will be on this for a little while, like 3 weeks or so. And if all goes well and no reactivation of GVHD then we will go down more.

I intend to work with my body on this and that there will be NO reaction, only rejoice in my body for having less prednisone in it. The Photophresis is the replacement for the prednisone and aside from the big chunky needle that goes in my arm it is pretty painless and passive and fascinating.

Things are going well with the Fundraising for Light the Night.
I have heard here and there that sometimes the URL doesn’t work. I think their system gets funky sometimes. But the fundraising is still going on, up till about Oct 15 or so, the Walk is Oct 18

Here is the URL just in case
http://www.active.com/donate/ltnSanFr1/2124_Apronkittie

Checks can also be sent to:

Victoria Wallach
9 eagle St
San Francisco, CA 94114

Checks should be made out to:
Leukemia Lymphoma Society

Also if you are interested in seeing CRAZY SEXY CANCER and don’t have cable let me know and I can burn you a copy commercial free and mail it to you.

Just email me at:

[email protected]

And I will burn one for you and send it off. It is totally worth the watch and very inspiring.

Have a beautiful evening, sweet Dreams and a delightful day tomorrow

May love and peace fill your hearts.

Purrs, peace and Love and Prayers
For all of our Complete Unlimited Health and Healing.

Namaste
Victoria