Taking Matters in my own hands...

Hello again

I guess I have a lot to say these days, since there is so much going on.

Well today I had a pretty good visit at the clinic. Pricilla is out of town and I got to visit with Cheryl for a while. She seems to have a lot of knowledge although is a bit on the blunt side.

I got a few more answers about Photophreisis, mostly it really isn’t for the lungs specifically but that it calms the T-cells down over all.

The lungs take the longest to heal, so I will notice first the skin, eyes, mouth, then lungs. So yes we are talking a few months.

My guess is that Doc Martin wants to get me off Prednisone sooner then later, and Cheryl was saying you could be on it for a year. I am not buying that, because Doc Martin isn’t big on the long term med thing if it is not necessary.

She said yup it is a pain in the butt because of the amount of time spent doing it. 4 hours or so, 6 hours in total traveling to and from SF to Berkeley. like I said 2 times a week 2 days in a row for a month, then usually every other week.

But darn it I know it is going to do the trick.
I am having daily conversations and prayers with the T-cells to fight with me and not against me.

They did such a great job getting me in Remission. Its time to form a United Front and build an immune system that isn’t attacking the innocent one...ME! We all have this ability to talk with our bodies and you know I think they listen.

I’m on a beta blocker now for the high blood pressure and so far no side effects. Thank goodness. We are starting off slow, half a pill then build from there. For now there will be no effect the blood pressure but later on I guess it will.

I was supposed to wait for Alta Bates to call me with my first visit to the doc who is going to over see me in this process.

I thought hey I know the guys name, I am going to call his office and make sure things are moving along.

Well come to find out they were still waiting for info and Pricilla is on vacation and her assist is swamped. So we were in a holding pattern.

So I set up my own appointment, gave them Megs number and I am set to see the doc next week ( Tuesday) and will start the process the following week.

There is no reason to wait. When I am here at home and I can take part in my treatment. No reason that I get caught up in other people overloaded schedules.

I feel proud of myself and was loving and respectful while doing it. The woman I talked with was great and happy I called.

Im grateful that there are people on my side at UCSF but they get so busy and overwhelmed. I want to stay on top of things.

So I feel at peace because I am fully aligned with it all. I am ready and prepared and aware and doing all I can.

Everything Cheryl suggested today, breathing exercises, acupuncture, even yoga, and stretching my sides I am already doing.

So here we go...another phase towards healing

Hey maybe I need to listen to Bon Jovi since that is who Kristine, my donor is into...T-Cells is that what you want.....do we need to rock out so that you will stop fighting me and join my team?

Thanks for listening and loving and praying.
And remember always ask your doctor tons of questions take action in your own care no matter what it is.

Purrrs and prayers and love
Victoria

Namaste
Victoria