Monday, May 07, 2007

Tripping on Prednisone..saying Bye to GVHD..Blissed out...

Hey lovely Community

I hope all is well in your world. It has been HOT is SF....in the high 70's. So where ever you are I hope you are enjoying your life.

I cant go out in that sun and bask in it like I used.... my eyes are a bit messed up from the Prednisone and it all makes the skin extra sensitive..

This is an interesting Medication. I feel so so so hyper, but my heart doesn’t race. I just feel like I want to do a million things. It’s hard to sleep at night but I am sleeping.

I am not complaining. I’m on a low dosage, I won’t be on for long, after less then a week it is taking care of my body.

Now I am learning about this drug and the changes are creating in my body, even it is for this moment.

I feel like I have a little buzz going...It’s humorous at times but then I also feel worn out so its hard to slow down.

I like that I can feel the changes, then I have aligned myself with it and talk to the energy of the Medicine and ask it to take it easy on me when its doing it job.... and it listens, along with Creators help :)

Yesterday I got to visit 2 of my friends who are on 11 Long. Keith, who just received a bone Marrow Transplant, after searching for years. He is doing well; He’s very feisty, and ready to get out now. He seemed to have a lot of fear in his heart when I would talk with him in clinic. But he is calm and grateful and at peace now. He is so sweet, him and his daughter made me beaded earrings and a bracelet I tell him you are here, look how much you have been fighting for 3 years, and here you are and you can do this. He has a dear dear heart.

Then I visited this young woman Andrea, 20 yrs old, whose Leukemia came back. She is the Light and Spirit of that floor right now. They have allowed her to have her 4 month puppy with her at all times. and she was glowing and happy when I saw her. She said the puppy is helping her a lot. I believe it.

I didn’t know her very well before that visit but I feel like she is my sister now. Dr. Martin is her doctor too and she shared that he got very emotional with her and has hugged her while she the sickest in bed ( I love Doctor Martin)

She loves animals and lives on a dairy farm down south 4 hours. She said when she gets out her Dad is buying her a Llama. How could you not love that!!! I love Llamas too.

I was on the floor for 3 hours. When I got out, although I was so tired. I felt so blissed out and grateful. To know these people, to have a community I can talk with and listen. To understand the needs when you are trapped in a room and are not in your life.

I thought: I feel very lucky to know this part of life. People are so amazing and courageous and faithful and loving and fun and funny. But we are all fighting to survive, to keep our life to do the things we want and hope for.

I realized this is how it should always be Cancer or no Caner, a heartbreak or a happy relationship, What ever life decides to give u there are ways to find hope and joy and laughter and community and Faith in all of it.

I am so grateful for that reminder and for my Body and spirits ability to go to that Temple and see those people.

It always makes me so happy to see my friends at clinic and meet new people.
It is a different world for sure. But it is part of my world now.

When I returned last night after my visits I got to watch this wonderful show on Discovery Heath. “Ted Koppel’s Special Report Living With Cancer”

I was afraid to watch it alone. But that show too gave me such a peaceful sense. I highly recommend it. Some of the things the people living with Cancer talked about is what I think about from time to time.

I think the show is helpful for survivors, people living with Cancer, Caregivers, doctors nurses.......people that never been around cancer in their life.

So please check your cable listing.
Discovery Health Living with Cancer with Ted Koppel

I would love to write more but my eyes are so blurry right now. Time to give them a rest.

Thank you all for loving me and my family and praying for me and my family and holding a really good thought for all my doctors and nurses and caregivers.
I have so much love in my heart.
I am Alive
I am Happy
Its spring
Its an amazing day to be alive

Namaste
Victoria

1 Comments:

Blogger Lori said...

Victoria...

My husband and I also watched the Ted Koppel report and were glued to it. And, we found ourselves nodding with agreement a lot. Particularly at the description of the lives of those living with cancer who have one foot among the living and one foot in the cancer world.

That is a surreal state of affairs.

So glad you visited. I have not yet been able to return to Unit E at Stanford. Just not sure I can handle it.

Blessings, Lori

9:52 AM

 

Post a Comment

<< Home