Taking Direction from My Body...

Hello Sweet Sweet Community

It is Spring yet where you are?? I know parts of the East and Mid-west are still getting really cold days, even snow. It rained here last night, which is odd for this time of year.

I know all the flowers love it though. They just want to grow.

I feel very blessed that my body allowed me and Noah to participate in Brenda's Celebration of Life ceremony. It was held in Concord, CA., about an hour from here. We thought it was going to rain, but the clouds opened up, the sun shined and it was beautiful. It was held in the Rose Garden of this Country Club kind of place. It was just amazing. There were ducks and geese around. Humming Birds hovering above us. Tons of kids playing before and after.

She was in all those things and the hearts of everyone there.

So many people telling stories of Brenda’s last nights and days and the things she said and how she was with everyone. One story that was shared: She asked a friend...Why do you think god did this to me? Her friend responded, did what Brenda?...Her response was, Surrounded me with all these loving people!!!!!!

She touched so many people, and will continue to do that. What a gift it was to be there.

OK so for me and my health…

Counts are Great. Really good, gosh my platelets are over 300, thanks to those donor cells (thanks Christine), so my body is happily making blood for me.

I do have GVHD on the face, in the mouth and in the eyes; one liver panel is up a bit. So I am back on the same dose of TAC (immunosuppressant drug) in the AM and PM. In a few weeks I should be back to the energy level I had before and have no more rash or discomfort.

Doc martin is happy with what occurred and considers it minor so this means no going on steroids, which makes me happy. So I will be on this dose for a few months and we will try the weaning process again.

I am happy to take direction from my body right now. This means napping during the day. And 8 to 9 hours of sleep at night. I’m doing it too, which is a real change for me. Naps are usually hard to do, but I am doing it and it feels good and it easy. The Cats love it too. I get to keep them company while they are sleeping. So the 3 of us happily sleep in the coziness of our bed.

I’m Ok to rest. I want to heal more deeply every day.

So whatever I think I HAVE to do can certainly wait.

For the first time in a while I have no where I need to be until Tuesday morning when I go to clinic. So Im going to sleep, MAYBE walk, maybe make a run to get some fresh food, and watch movies. Its been nice to sit on the couch and watch Spring happen outside.

Life is good. I’m finding my center after an onslaught of many many emotional changes.

I am alive and breathing and making blood. I am loved and have so much in my life.

Noah is amazing and sweet and has been gentle and helpful. And we are both healing every day from the Trauma of last year.

Have a Beautiful Springtime Friday. It’s nearly 7PM and the Sun hasn’t set yet. I love this time of year.

Thank you for all your love and prayers and thoughts and all you do. Remember if you are up for it.... donate blood and platelets. If you haven’t contacted marrow.org, do so. It’s all so easy to be a donor and it is so needed.

I love you all so much.

Namaste
Victoria